Cancer Selfies

Jul 17, 2024

Hospice

Hospice Suite. St. Joseph's General Hospital, Elliot Lake, Ontario.

The hospice suite is my home now. I've been in treatment for a partial bowel obstruction for a few weeks. For a while, it was promising, but then things turned, and the word hospice was uttered more and more regularly.

I have thoughts about many things, about how we talk about people as having lost their battle with cancer (you do you, but it's not for me), the ubiquity of Fuck Cancer bumper stickers (you do you, not for me) and even my own cancer as a seige (I like it more than a battle, but ultimately it shares the same problem). I can't stand the hushed tones and terror in our voices, as though it was some cheap fantasy villian.

All I've got, after two years of treatment and surgeries and hospital stays and mounds of medications and so much vomiting is the slowed down, minor key, horror movie trailer cover of Abba's Waterloo. Something fun and wonderful turned terrible, terrible but somehow compelling.

I intend to remain in hospice for the majority of the remainder of my life. I would love to see people. Lots of people. The celebration of life that will follow my passing will be a smaller, quieter affair, to reflect the wishes and needs of my family.

The Hospice Suite is located at St. Joseph's General Hospital in Elliot Lake, Ontario. 70 Spine Lake Road. Visiting hours are listed as 11AM-7PM, but staff have been really flexible with us so far.

Elliot Lake is two hours from either Sudbury or Sault St. Marie, has one hotel (Hampton Inn, it's nice), there are highway side motels (varying quality) and some options in Blind River (40 minutes away).

Because of disease progression, and especially the amount of painkillers I'm on, I don't have as much internet energy as I used to. I'm trying to read everything as I can, but I won't be able to respond as I used to. It's just the nature of my Waterloo.

I love you all, you've meant so much to me for as long as I've known all of you, and especially for the last two years.

PS the hospice is animal friendly, so you might get to meet an orange cat (but she's been anxious, so we might leave her at home)

PPS this is a catholic hospital, and that's a complicated question for the healthy to debate, I'm not interested in that debate, any discussion of religion (I'll fist bump and share a Coke over some forms of annihilation) and any discussion of politics.

PPPS I don't know how long I have.

Welcome to the St. Joseph's Hospital hospice suite (3rd floor, we'll signed from entrence, visitors welcome). My new home. Featuring my new best friends my IV pump, nose tube (we've made up our differences and found similarities - a love of slushies the big one so far) and, timidly hiding in the background, the vacuum pump that powers the tube. Being an electromagnetical device, we got on famously right away.

Hospice suite! This time featuring my final (present) medical friend, the pain pump. The pain pump lives in the black bag, has an IV to my upper leg. It semi constantly pumps hydromorphone into my system (with super fun bonuses as I need them). It's the real star of the show, I'd be in crippling agony without it.

Hanging out in my room

The sunset was magnificent, but you get to look at me

One of my old hospital rooms (the tube and I are friends here)

July 9th discharge excitement! No nose tube! (we haven't made friends yet)

July 6th. Second trip to emerge. The injection wore off and the pills weren't doing it (combination of intensity of pain, strength of pills, and that my digestive system is on shambles). I was admitted for a partial bowel obstruction. It was a repeat of April, moving from an IV diet to a clear fluids diet. We stopped at that, I was discharged, with instructions on how to complete the cycle back to normal. We we're discharged on the 9th. Early the next morning I would throw up again, the previous day's everything visible (easy when you eat juice and jello only). The obstruction was back.

July 5fh. The last time I had solid food. First trip to emergency for some pretty extreme pain. We thought it was extreme constipation (and might have been). We got some better painkillers and went home. I was very high, Tim. Hortons made some terrible drinks (I generally like their fruity fun time beverages). I threw up. Probably the painkillers, but we'll blame Timmie's.

The night before Alberta leg zero (Elliot Lake to Midland to pick up Alicia. The last and only leg)

Hanging with the kitty cat before it all went down

Serpent River rest stop, a few weeks ago. This is the last time I remember feeling mostly okay.

Serpent River

From the comments

Susan J. E. Ritta: Sending you peace and comfort. We connected through podcasts and I'm so grateful for it. ❤

Jamie Piedmont Murgatroyd Teller: You got your Squishmallows with you?

Amber Andersen: My friend, it has been an honor and a privilege to witness your Waterloo. I wish you peace and comfort in your final days, and I'll be posting some doggo and catto pix here shortly. I adore you.

Tess Sullivan: ❤

Anthony Daley Di Poce: Both of my fuzzy-kin say hi. I'll miss you and your posts. Thank you again for your digital friendship.

Park Parkison: Hugs from an orange cat.

Marion Quigley: Jim thanks for sharing and being so open about your life and your cancer story. You have an amazing ability to tell your story and always look at the bright side. Even though I haven’t seen you in years I feel I know you. Jim Quigley grew up with your dad and I worked with your mom and we became great friends. They made 3 wonderful sons together. We are living in Ottawa right now so can’t visit you but know that we will be there for your parents always!

Love Jim and Marion

Garrett Harer: Hey bud, thank you so much for sharing your journey over the last couple of years. I'm keeping you in my thoughts and wish it was feasible to pop on by to see you (and let's be honest, the cat). 🖤

Ashleigh Latimer: James do you think we could do a video call one day? I don't think I'd get as far as Elliot lake. If you can't that's alright too. We will figure out something

Christianne Manzano: Shumai and I send our love.

Stefanie Culp: GingerSnapz and I send you lots of love on this leg of your journey. I’m glad a certain orange friend might be able to come visit you.

Gillian Bradford: You’re a stranger but you’re not. Thank you for sharing so much of your life with this rando from Oregon. My earliest memory of you in my FB world was a picture of an orange cat in your house with a caption saying something along the lines of “I don’t have a cat.” Cats are good judges of character, and she knew you were a safe and good place to land. So much love to you. 💗

Dayna Normand: Thinking of you James!

Laura Caputo: I think of you every time I see a goose meme. I am sending feisty goose thoughts and my cat says hi 💜

Dawn Gildenmeister: I’m so grateful for you and what you’ve shared out to all of us. Thank you again for this friendship 💗 much love to you and yours from these two little friends as well.

Juha Heikkilä: I really wish I could come and see you. Unfortunately I do not have pictures to send you right now, but I'm sending you love and kindness and everything I can. You are amazing and I'm thankful that you've shared your story with us.

Alex Schroeder: Sending love from Artemis and DVa

Elysia Yardley: I really want to commend you for your courage in sharing your journey with us. You have shown resilience, humour, strength, and I’m so grateful to have become internet friends. I live in toronto but I would be happy to send you a little something? I’m also here if you want to talk. Sending you so much love and a picture of Zoey

Eva Bowering: I've been laying sage and tobacco down for you everyday (for what it's worth). You are such a great friend. If I can get up North somehow I'd visit in a heart beat. I know others have said this but thank you always for sharing and allowing us into your world 🌎 ❤️

Stephanie Phillips Lee: Know that someone very far away is thinking of you and wishing we could meet in person. I’m always happy to to see you pop up in my threads. Here’s a silly pup.

Norman Tremblay: Thanks for the update James. I love you and I'm thinking of you. 💜

Benjamin Jones: Sending love and fluff Llama Mattingley: Beeb wishes he could visit! Sending you all the best vibes 💜

Soun Lee: To the tune of your Waterloo and goose honks. May you be in peace and comfort, I know you must have had a solid rock collection back there and got out and saw some of those slabs. 🫡

Janet Dorion: We are working on a plan to get there

Cecelia Morelli: James I’ve been thinking about you so much the last few days. When a movie will pop into my head or when I am simply sitting and loving on my cat. I think of you and how you have become this person in my little world by some accident of internet groups and shared interests and cats. I think you are so wonderful and I’m so glad to know you even in this seemingly small way. Would it be possible to send you something in the mail? A letter or card or something? I want to send you some art

Anne Marie Newman: Sending so much love. It’s been wonderful getting to internet know you this last year or so. 💚💚💚

Jeremy Simington: Safe journeys, James. These goood boys are greeters on the other side of the rainbow bridge.

Owen Devonshire: Take care, brother. It’s been great to know you all these years even in this limited way. Here’s a couple of my pups.

Katie Bryan: Sending you all the raccoons and opossums you can possibly stand. I have loved getting to know you all of these years. Safe travels my friend ❤️

James Petrosky: Sleepy albino raccoon is an important nap spirit for us all

Tara Kraft: I finally found a table runner I really liked for my dining room table. Duh, it's made of jute, my cats love it too. As far as they are concerned, I just turned the dining table into a giant cat bed. It's theirs now. Don't judge me.

Sarah Hohman: Kalan caught mid-bath. Whatever the future holds for you, your strength has inspired a lot of people. And I'm sure you haven't felt strong all the time. I'm sure you've had breakdowns and struggles and emotions I can't even imagine. But you've faced everything with humor and clear eyes and resolve and Kalan and I have nothing but love and respect for you.

Emilie Victoria: Picture of a baby baboon from African lion safari last week for you ❤️ thinking of you and praying for you, James. Thank you for sharing your journey with us. Sending so much love to you.

Emilie Victoria: And who doesn’t love giraffes!! 🦒

Lan L.: ❤️❤️❤️❤️❤️❤️

Mica Richard: Thinking of you with love

Sam Selby: It's been a pleasure getting to know you, even just over Facebook. You're a really good person, James, and your presence will be missed greatly. 💖🪿🦝

Tom Bisby: I'm sorry I never got to know you better after the mutual interest in podcasts. You always seem like such a fun, interesting person when I see you in my lurking and I was always a bit shy to talk. Wishing you the best from myself and Simmy in the UK

Geoffrey Lee: Hey James, I've been missing you from Kitchener. I remember all the good times we had on our random beer nights and hanging out. I have been following on Facebook, and I love that you've been living your fullest that could be. I will miss you James.

Steph Nelson: This is Milo. He belongs to the kid of the guy who runs the local coffee shop, so he was hanging out there when I took a shortcut through the shop earlier. Human pictured is my coworker.

Steph Nelson: Lily got caught trying to break into my plant closet

Steph Nelson: I appreciate you and your openness, James. I love your personality and your way with words. Thank you for sharing yourself with us. ❤️

Peter Tremblay: We hope to see you this weekend Jimmy. ❤️

Rina Haenze: Every time I see a goose, I think of you. Sending love from me, Garak, and all the geese I see when I walk past the lake every few days (there's a polycule! 2 females, one male, all raising a small family together every spring).

Brennan Moline: Beau and I send endless love. We will watch Cats, and look at water fowl, and appreciate squishy orange cats, and nod at lessons on the geosphere (you can tell how much we have to learn), and think of you. Thank you for sharing your truth, your journey, your physicality, your voice. You are among the best people I've met yet in my life.

Grace Tomczak: Sending you as many positive thoughts as possible. You made an impact on me and I will always think of you whenever my eyes land on a goose.

Beth Theyba: You welcomed me into the LGBTQ+ Flopsters group and helped me feel like I belong. Like many who have posted, when I geese (also sometimes ducks) I think of you and how welcoming you are as a person. Thank you for sharing your life with so many people, including me.

Laura Brzezinski: Some Geese in Blind river on sat. 😁

Anne Marie Newman: Thinking of you. 🩵🩵🩵

Laura Labedz: Hugs ❤ I'm glad I've gotten to know you over the past couple years. I'm thinking of you and hoping you have a peaceful time in hospice.

Kate Lux: You're someone I wish I could have met in person. I'll keep sending you goose (and occasionally duck) related things for as long as you've got left. And I'll remember you every time I see geese.

Melodie Younce: this is millo, an italian dog who sat next to me while i ate pizza

Ryan McGill: Chimichanga and Dr. Jack Claw, PYT wish you the best. So do I. Thanks for being my friend.

Heather Reller: Buddy sends his love

Tammy Raposo: James Petrosky,

When I think back to our high school era, it's with admiration. Your intelligence and wit was simply beautiful! I always admired you! You just understood things. On top of all else, your courage, bravery, vulnerability and grace through this journey is something I've never seen before and I thank you for teaching us.

My brain can't seem to remember much details of high school (& I account that to "mom" brain right now), but we had many good laughs hanging out at Jenny's and Nelson's basement, or hitting up the theater in Timmins for Harry Potter? I think that was the last time we hung out!

You were the logic behind any adventure! I can hear you calmly saying "oh boy!" just before our misadventures sliding down the Chapleau High School hill. I have such gratitude of the friendships we had in one of the most transitional times growing up. You are an inspiration and for that, thank you, for being you.

Joe Laf: Jimmy, you are an inspiration. I think about you everyday buddy, I wish I was half as brave as you! ❤

Mica Richard: Melted cat or big black slug trying to merge with the tree? (that slightly shiny point on the bottom is her nose)


Consider donating to St Joseph's Hospital in Elliot Lake, they do excellent work for a small community. They're working on improving their oncology area, which is very close to my heart. These improvements will allow more patients to recieve their treatment in the community they live in, rather than traveling two hours each way to the nearest cancer centre.

If you want to keep your money closer to home, then please consider donating to a hospice. The one here has given me and my family so much joy and comfort in a very difficult time in our lives time. I don't think I'd still feel as alive and vibrant, and I would not still be creating, without the care this hospice provides. Hospice is a gift we all deseve at our appointed hour.

Jun 28, 2024

Body Horror

I think that scene in Annihilation where the guys intestines are writhing like snakes captures how I feel a lot of the time

From the comments

James Petrosky: Cancer is living body horror. There are constant new and grotesque violations. You always know the ultimate cause (those immortal detector cells), but your never sure what devious plot they're on now.

You know how the movie ends, and what the last few minutes look like. But you'll never predict that third act bear monster / the loss of the ability to feel comfortable when your sitting or lying down. The violations do not stop.

Jun 18, 2024

Heat Wave

It's a heat wave! I'm using a heat pad on high! What a wondrous time to be alive!

From the comments

James Petrosky: No, I don't have AC. I don't even have particularly good fans (job for tomorrow). But at least I'm on the edge of the hear wave, and we're down to 25, which is what I kept my apartment at all winter

Jun 14, 2024

Jun 12, 2024

Cancer is Biphobic

As part of my pain prevention and management routine, I have to sit like a regular person at all times. Which means that in addition to a handful of other very bad things, cancer is also fucking biphobic.

From the comments

James Petrosky: This is a very silly joke that is also 100% factual

Ëmmy Smäll: welp I just almost horked the water I was drinking out my nose

Justine Wiesinger: Oh no, with your feet on the FLOOR? 🤢 I have been struggling with this over the past week

James Petrosky: Justine Wiesinger I can't even cross my legs for very long (but also can't make myself stop doing it)

Justine Wiesinger: James Petrosky Yes all week I felt unable to do crafts like cross stitching because I couldn't pull my feet up onto the couch so what's the POINT

Justine Wiesinger: UNCOZY ❎DISRESPECTFUL TO QUEER CULTURE 👎👎

Mareile S. Håland: The dreadfullest cancer fact yet 😮 /lh

Christa Pace Martin: That’s just rude.

Stefanie Culp: That’s just disrespectful of it and during pride month too, how dare

Ross Keith: I fucking knew it

**Rebecca Liddle Blair: Nooooooo…whyyyyy… I have spine issues that also don’t like that I bi-pretzel, but I do it anyway!

Sarah Baggs: Ugh when I’ve hurt my hip and need to sit up straight to avoid the pain it is like TORTURE

Jun 09, 2024

Reflecting on HIPEC

There are a lot of times in my life where things didn't go quite as planned. Today is the one year anniversary of she they went nearly as far from planned as possible. This day in 2023 was HIPEC surgery day.

I expected to be a lot more emotional about it. Expected the past week to bring some dread or excitement, but instead I've only broken routine for my little adventure yesterday. I want to say I got the buttertarts or lemon squares to celebrate, to mark time, but I wasn't thinking of any of that.

So here's to surgery day, the day we all lost hope for a cure, or long term treatment, and the start of when I stopped letting that bother me.

The following was originally posted June 9, 2023

Months ago I expressed my distaste for the cancer as a battle or fight metaphor. It might represent some people well, especially those with stage 1 illness, but it doesn't reflect my experience. For me, cancer has been a seige. And today, friends, the relief forces have arrived, and we're going to do our damndest to break that seige. We done everything we can to ensure success, and now it's all in the hands of the fates.

A man stands in a hotel hallway, wearing a hooded sweater vest, he looks somewhat calm A man is in a hospital bed, wearing a hospital gown, surgical mask and hair covering, he looks nervous

Jun 03, 2024

The variaties of lower back pain.

Another day, another exciting new pelvic/lower back pain preventing me from living my life (doing laundry, going to Blind River to try a chip truck)

From the comments

James Petrosky: T3s work on most pain pretty well, except this one. Nothing works on this one. Maybe a round of chemo will, but that's just trading bad symptoms for bad side effects.

A stronger pain killer might help, but history tells me I'd be too stoned to drive all the time, and I'm already feeling pretty trapped at home.

James Petrosky: I had a few more days worth of pride posts planned, but I don't have the energy anymore. I hope everyone has a good time, and that bigots get some sense knocked into them by a giant magic goose, but that's all for me.

May 30, 2024

Northeast Cancer Centre

When I moved a month ago, I left my old health region. This means finding a new primary care physician, palliative care physician and oncologist. I'm still working on a GP and waiting on a referral for a local palliative care doctor, but today I met my new oncologist.

In the past month, my symptoms have gotten noticibly worse. The pain in my kidney is more severe, and more common, and the other one has joined in, too. Plus, lots of random pelvic pains. Codine is controlling it well, but this is the first time since diagnosis I've needed regular pain control.

We'll be restarting chemo as soon as we can because of this. There are tests and paperwork to get out of the way first, but my doctor would like to have it going in the next couple weeks. Between the first and second rounds of chemotherapy, I had six months (most of which were spent recovering from surgery), this time I'll have around two. I'm doing well, given the situation, and am in good spirits, but the disease is progressing, it cannot be stopped, and the outcome has never been in question.

And as a way to show how completely this experience has changed me, I confidently, and completely without anxiety, asked how much time I have left. And the answer didn't phase me. Human beings can adjust to, and become skilled at, anything.

A year.

Which is an upgrade over what I thought this morning.

Killing time in Sudbury before my appointment

There's a lot more green at the Northeast Cancer Centre compared to the Simcoe-Muskoka Cancer Centre, but otherwise they're very similar. I didn't miss hospital waiting rooms, but they come with the territory

Outside the thrift store, after learning that the one I actually wanted to visit was closed (its moving and will reopen soon, which didn't help me today)

One of my favourite bridges! Highway 17 at the Spanish river. Just look at those beautiful trusses.

From the comments

James Petrosky:I share a lot, but also don't talk about a bunch of things. January and February were very hard for me, having a birthday that was poorly marked (chemo's fault, it was celebrated eventually) when you know, with low but significant, certainty that it will be your last is one of the most difficult things I've ever had to do. I'm not excited about doing it again.

No, you (everyone) couldn't have done anything to help, or I'd have asked. I almost never talk about it, but the cancer centre does have some mental health support. I've made extensive use so far.

May 25, 2024

The weird way pain manifests

I think, through culture and experience, we all understand that cancer brings a lot of pain. Friends, they don't lie, but I've never seen anyone talk about how weird that pain can be.

This message brought to you by my body interpreting skin stretching, of the regular sort that might happen if you were laying on your side, as somewhere between discomfort and pain.

From the comments

JamesP: In some people and cases, constipation can register as back or hip pain. For me, it's every time I need to use the washroom.

JamesP And, just for fun, I get random stabbing pains throughout my pelvic region. I suspect this is an impacted nerve. It can happen any time, but generally comes in clusters and usually with other sources of pain

Christine Otterman: I guess it's got to be an all around unnatural experience. It would be hard to not be suspicious of what it is and what it means. It's probably difficult to articulate, therefore no one talks about it!

Janet Dorion That sucks. I can't imagine. You are so strong!

James Petrosky It's a bad situation, but I'm usually feeling okay much of thday, although the evening is devoted to pain management so that I can enjoy the next day as much as possible.

Brennan Moline: Susan Sontag, in writing about her own cancer, once discussed how pain tests the limits of human language. That it becomes incredibly isolating because it's impossible to truly explain to someone else.

May 14, 2024

ADHD, Again

Anyone else find that opening and closing curtains is one of the most surprisingly mentally taxing things you do daily?

This post brought to you by ADHD

From the comments

James Petrosky: I have no choice here, my apartment faces the enterence and I have no desire to flash all the retired people, but at my last place I think I touched them once every few months, more to track the sun than anything else.

May 13, 2024

Boil water over!

After eight days the tap water is officially safe again!

From the comments

James Petrosky: Which is great for us, but a week is not a long term advisory, and at least 28 First Nations communities are still under long term (over one year) advisories. A week sucked, a month is unimaginable to me, and I have no words for what a long term advisory would be like.

May 13, 2024

Boil Water day five

We're on day five of a boil water order and it's rough on regular people, but between my kidney and the cancer I need to drink so much more, and the whole process is exhausting.

From the comments

James Petrosky: 5 days is a lot, but it's also fucking nothing. Neskantaga First Nation has been doing it for 29 years pretty much only because we suck and are racist.

May 13, 2024

Partial Bowel Obstruction, Redux (Forshaodowing)

Was up half the night trying to decide if I should visit the hospital because of a new, exciting and particularly spicy pain. Thankfully I don't remember much, but I fell asleep eventually and woke up with regular levels of pain.

From the comments

James Petrosky: It didn't feel anything like another obstruction. That was distinct. I think it sometimes just really sucks to be conscious for no good reason.

James Petrosky:I have chores and hotels to book and I just can't get enough give a fuck going to do any of it. If I don't soon I'm going to ruin my whole trip and I just can't care.

Apr 29, 2024

A day off with Thomasin

We've given up on unpacking for today, and are going to take tomorrow off to lay around and do nothing. We've earned it.

From the comments

Brennan Moline: How is Thomasin adjusting? She looks comfortable

James Petrosky: Brennan Moline she was overwhelmed the first day of packing, and at the hotel during travel, but has been excitedly exploring and plotting escape into the hallway for days now. She's probably doing better than I am James PetroskyIt helps that the bed and bedding are the same, and she still has her cat tree. The constants are safety when overwhelmed

Apr 29, 2024

Apr 27, 2024

Sadie

Did a lot of work today, and am very happy with progress, but the best part of the day was the 15 seconds I got to pet a golden retriever

From the comments

James Petrosky: His (her?) name is Sadie and I've been trying to pet them for years, but they've always preferred to play with the poodles, and honestly I can't blame them

Apr 26, 2024

Lying in bed

It's hard when you're condition makes you need to lie down so much that lying down itself is uncomfortable

From the comments

James Petrosky: Starting with chemo, I've spent 12 days mostly in bed (including one night in a gurney that was really bad). But I just don't have energy

Apr 26, 2024

Apr 25, 2024

Moving Day! Part 2

I'm at a hotel in Sudbury, my destination for the day. A few things:

  • Thomasin is enjoying exploring the hotel room, I also let her out on the car while I was taking bathroom breaks and she loved exploring there, too. She's only left my apartment once since I adopted her, so today is a very big day

  • There is a pagent going on in the hotel for adult women. I didn't know those were a thing. It's pretty cool. I chatted with someone I assumed was a judge but who was actually a really enthusiastic participant

  • A lot of the tv stations I can receive are American. I will never, ever get used to drug ads. But they're a price I'll pay for The Fifth Element, which is easily the best thing I've ever seen in a hotel

From the comments

Kate Lux: Yeah, there are "Mrs ___" pageants (25-40, I think) and I think ones for seniors too.

James Petrosky: Kate Lux the world can be a strange and beautiful place. It does explain the women my age in prom dresses I saw when I arrived, though. James Petrosky: Even in a strange place like Sudbury, you don't have weddings on a Thursday. Which was the only reason I could think of

Apr 25, 2024

Moving Day! Part 1

We're on the move!

From the comments

James Petrosky: *Thomasin is in a carrier when we're actually on the move

**Stefanie Culp: What a solid navigator!

Sarah Marie Yurkiw: I hope it all goes very well.

Tu Biederman: Thomasin is SO CUTE I want to cry

Beverley Singer: She looks like she’s enjoying the ride.

James Petrosky: Beverley Singer she's traveling much better than I expected

Brennan Moline: So much trust in you ❤️

Ryan McGill: This is a GORGEOUS picture.

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