Thanksgiving 2022
Cycle 2 Day 12
Thanksgiving is probably my favourite statutory holiday. I enjoyed the one I had, it couldn't have been better. But it's still difficult to mark such milestones.
Cycle 2 Day 12
Thanksgiving is probably my favourite statutory holiday. I enjoyed the one I had, it couldn't have been better. But it's still difficult to mark such milestones.
Cycle 2 Day 11
Last week I noticed that my hair was thinning noticeably. Today I noticed that my facial hair is following the same pattern. But I was able to be the most physically active I've been in nearly a year today. I was limited by dinner time, not nap time, for the first time since at least the spring. The side effects are difficult, and even though it can never be a cure, the treatment works, and it's worth all the hair loss.
James Petrosky: The cattail, in its fluffy magnificence
Cycle 2 Day 10
Its Thanksgiving weekend in Canada, and we're having our turkey dinner tonight. We rarely have it on Monday, the day Thanksgiving actually falls, because you have more non work days to eat delicious leftovers. This time, it's not work, but the start of Cycle 3 on Thursday, that motivates celebrating early.
To my Canadian friends, I hope you have the Thanksgiving you dream of.
To my non Canadian friends, have a wonderful weekend.
James Petrosky: Another of the poodles on their own
James Petrosky: The menacing October sky of Lake Huron
James Petrosky: Thanksgiving dinner round these parts (this little cottage, specifically, and not necessarily anywhere else) is a roasted turkey served with fresh (never canned, canned was served at a family gathering once years ago and that faux pas is still talked about), mashed potatos, dressing (no stuffing is served), gravy, boiled turnip and steamed green beans. Peas often replace the beans, but we found some fresh ones this week.
Unfortunately neither of my brothers, nor my partner, could make it. But we do the best with who we have (namely, my parents and the poodles)
James Petrosky: In case you were wondering what we watch on tv during and after dinner, is the United States National Park Service Alaskan bear cam and a collection of webcams in Siberia.
James Petrosky: Sunset at Woodland Beach
Cycle 2 Day 9
Today is the first properly cool day yet, we've had a some chilly mornings, but days have made it to the double digits. Not so today. Today I learned I'm going to need to get used to wearing a lot more sweaters than I've ever had to before.
I'm choosing to take this as an opportunity rather than a setback, because sweaters are quite nice and I adore cardigans.
Cycle 2 Day 8
You know those days that feel like overwhelming victories because they went fine rather than catastrophic? I'd file today with those days.
The news is generally good. Mt. Sinai has similar procedures as Royal Victoria does. My case will be presented to the surgical oncology team, who will decide if and when surgery may take place. Typically there are two rounds of chemo (each of six two week blocks, for six months total) before you become a candidate for the surgery.
Cycle 2, Day 7
Tomorrow I meet the second oncology team. I cannot possibly express how anxious I am. If I am accepted for surgery (which i won't find out tomorrow) and if it goes exceedingly well, I could be free and have an almost normal life. But that's a lot of ifs. And I'm terrified that I'm not going to be a good candidate. And everything that entails. But I'm trying to stay hopeful, and if absolutely nothing else I'll know a lot more tomorrow by this time.
(What I don't need or want is any false assurances right now. I don't need to be told to stay positive, my moods are stable and toxic positivity is as dangerous as negativity. The best way to show support for me over the next day is with photos of adorable or delightful things and creatures. Please respect my wishes in this, but also please don't come down on anyone who doesn't see all this right away or interprets it differently. I'm an adult and I'll engage as I feel the need to. I love you all)
James Petrosky: I edited the one photo I said I wasn't going to and now I really like it so I'll just shove it here
Cycle 2, Day 5
Immediately noticeable side effects were pretty easy this time. I've learned how to properly take my side effect medicine, especially the one for nausea. My energy levels are back near where they were on last day 14.
But it was a bad weekend for my hair. After carefully brushing out a mat that developed over the weekend (probably started earlier, I've been really scared to touch it at all) I lost half a sink full. I knew this was coming.
James Petrosky: My catbus has arrived
Cycle 2, Day 1
It was so much easier this time.
Cycle 1 Day 14
Tomorrow starts Cycle 2. There will likely be six cycles, then some more testing, and then we'll know how well all of this is working.
I'm feeling a lot more calm and comfortable this time. I've got a good idea what's coming (three days of barely getting out of bed, one or two more feeling pretty rough), but I know I can expect the rest of the cycle to bring some energy and a lot more joy than I've been used to the previous couple of months.
Cycle 1 Day 13
A short and not comprehensive list of songs I've had to remove from my playlists since being diagnosed with cancer:
There are certainly others, but these found themselves removed today.
I want to reiterate how wonderful you've all been, how much your kind words and Facevook reactions mean to me. You all mean so much to me, thank you all so much for existing ❤️
Mica: Have you seen the anime short of the little girl who gets turned into a gengar? So cute
Cycle 1, Day 12
I haven't felt this good in months. My pain levels, while still much higher than my pre cancer baseline, haven't been this good in months. I have energy, apatite, drive. Chores are caught up, projects are being done, hobbies being perused. But there's so much to do before Cycle 2 starts Thursday.
David: So you can do this ?
James Petrosky: David I'm going to keep going for sure. It's not a war or a battle, it's a seige. I'll hold as long as I can.
James Petrosky: I saw my poodle pal today ❤️ It was almost too dark for her goofy face
Cycle 1 Day 11
Cycle one is drawing to a close and I have A Lot of appointments this week. And I know I'll be bedridden for the first five days of cycle two at least, so there's a lot to do. But for now, I keep busy, I work on projects, I find water birds in new and exciting places. It's not the life I expected, but I'll still make it mine.
Cycle 1, Day 8
This cycle is now more than half over. I'm looking forward to my next visit to the chemo lounge with some trepidation, knowing now what it's going to bring, but also with the knowledge that I do physically feel a lot more well with treatment than without. My quality of life has not been better in months.
However, I have to visit the hospital Tuesday, Wednesday, Thursday and Saturday for consultations, bloodwork, treatment, and other care. Being sick is exhausting, but beautiful fall days (that I forgot to document) like today make the whole mess so very worth it
James Petrosky: Also I think I have a problem
James Petrosky: I'm not great yet, but I have lots of time to practice
Cycle 1, Day 8
I barely got out of bed today, after my little scare this morning. I'd have been fine if I could have had a Tylenol, but I'm not allowed to pharmacologically lower a fever, so I couldn't address my headache, either. Enjoy some terrible bed head selfies I sent to a friend but don't have enough sense or shame to keep hidden.
Cycle 1 Day 8
The PICC line goes directly from your forearm, usually non dominant, to your heart, following large veins. This makes it a extremely dangerous potential route for infection to easily and directly reach your heart, with consequences as dire as you'd like to imagine.
I have two red lines that, if crossed, I'm told I must immediately go to the ER for emergency intervention. They are above 38 for an hour, or above 38.3 at any point. When I'm running any sort of fever (for me, I've set my cutoff at 37, because I rarely stray beyond 36.5), I'm to take no medications that lower a fever.
All my painkillers are Tylenol based. They all lower a fever. So I'm also in a lot of cancer pain, with a cold style headache on top of it.
Long preamble to say that this morning I had a fever that peaked at 37.8. I didn't panic, but I did have a very tense couple of hours. Yesterday, I got my 2nd Covid-19 booster (hurray bivalent vaccine), which was almost certainly the cause of this. But I also had my PICC dressing changed, and the nurse was extremely careful, but who's to say I didn't get an infection (well, I am, now, but at 5AM that was not clear).
The tldr of it is everything about cancer treatment, or any treatment, is a trade off of risks and benefits. The PICC is a tremendous risk, but also a fantastic benefit. I was not ready for the level of responsibility I have to take for my own body during this. But it's a wild and fascinating ride
James Petrosky: To be clear, I'm in no danger. I never was actually in any danger. And if the situation had turned, I had everything ready to go to address the situation before it turned truly dangerous.
My partner and I have talked through all this stuff with the oncologist and nurses. We're not expects by any means, but we're informed and empowered and ready to act when needed. ❤️
Also, the side effects were much more minor for me this time. I got a proper fever all the other times, and were I healthy and working I'd probably have gone in today without even noticing it. So yeah, bivalent vaccine: 👍👍
Cycle 1 Day 7
Lots today, let's do bullets!
Addendum:
Cycle 1 Day 6
Even when you're sick with a potentially terminal illness, some days are just days. I did hobbies today. I played video games. I listened to podcasts without skipping around to only get light subject matter. I got some okay chip truck fries and baked them in a convection oven twice to make excellent chip truxk fries. I fired up my 3D printer for the first time since I was in trade school to make a joke at my own expense. I finally, one year later, finished modifying a Value Village tripod and took not great (but lots of fun) night photos.
Some days are just normal. They're rare. I treasure them.
James Petrosky: This is from 2020 but the GoPro software is hinky and uploaded it again and it's a really good photo of Thomasin and I so why not share it again ❤️
Cycle 1, Day 5
It was a good day, with good weather, and that should be remembered.
Cycle 1, Day 5
On day 5 I finally felt good enough to actually do stuff. It's wild to walk out of Canadian Tire and feel "yes, that was a pleasant trip that I both needed to take and did not make me feel upset in any way".
My apartment has never had a number on it, which has suited my desire for privacy, but not being monstrous to home care nurses ranks pretty high on my list of desires.
Plus! The weather today is extremely late summer/early fall and the breeze is perfect. I might take a picnic to the water if the weather holds.
I still feel a little sick, like I could throw up, but not like it's iminant. I'm getting used to it, but I'm feeling unwell most of the time. I don't think I can enjoy apple anymore, at least for a while, which is a pain because apple sause is one of the main foods recommended for this sort of queesy feeling in general, and especially for chemo patients.
James Petrosky: Eff it, it's a bit cool out (newly repaired thermometer reads 21.7C) but I've got the body fat to sit outside in the shade (one of the chemotherapy drugs makes you very photosensitive so it has to be the shade) so bonus recreation of an earlier profile pic
Cycle 1, Day 4
To properly protect you from bacterial, and especially viral, particles, a mask must be properly fitted to your face. And a chemotherapy patient should be properly protected if they want to maintain some sort of normal life by going to shops and such.
I didn't have to go so complete here, but I thought it would be easier to cut as it comes back in to fit the mask rather than the opposite. I'm having some major doubts right now, though 😛
I didn't shave closer because unnecessary cuts are also a risk to be avoided, so I'm stuck in this in between worst of all worlds (and it's pretty funny, I'm laughing, at least)