Cancer Selfies

Toronto Zoo

The Toronto Zoo is one of my partner, Alicia's, favourite places in the world. And over the course of our relationship, in the various forms it's taken, it's become one of mine as well.

As friends, it was a group outing we'd almost always both attend. Alicia, because she was the driving force behind nearly every zoo trip I ever went on. Me, because I went with the flow and an afternoon with friends and cool animals was always a delight. These trips were usually taken in the heat of the summer (now, as a zoo expert, I know know that summer is a fool's time to visit the zoo, it's full of children and the animals are all asleep, but, as groups, this is the time we had together).

Years later, and after many more trips, Alicia and my first real date was to the zoo. We knew we were a thing, of sorts, the day before. We'd had our conversation, started to define the nature of what we would be (which lasted about a month, before we realized we were just another romantic couple (attached, polyamourously, to another romantic couple, Alicia and her wife, Catherine)). That was the most memorable trip to the zoo I've ever taken, although I'll be damned if I remember much of the animal content of the trip. It was late August, 2018, it was hot, and the animals were all sleepy. The parrots were entertaining, monkeys rambunctious, and we drank so very much bluraspberry slushy (because we always did). The zoo membership discount was a compelling and silly argument to always have more, while the powerful daystar beating down upon us was a powerful and overwhelming argument in favour of hydration by that delicious fruitish flavoured drink.

The big cats are still an impressive sight in the heat of the sun. They're what I remember best from that trip. Basking all together, the lions especially retain their majesty and wonder more than most other animals, although a pack of wolves (which we did not see that day) can have similar effect. The tigers are somewhat less impressive, but sprawled out in the shade of their enclosures, but still radiate their beauty. Alicia and I are fundamentally cat people (even if I'm a pretty even split on dogs), observing the big cats do anything, even if it's as close to literally nothing as possible, is still a treat for us. Its an opportunity to pretend that our house cats are like the big cats. Thomasin is a Sumatran tiger, stalking the underbrush. Nemo, Alicia's cat (a sleek black house panther if there ever was one) is most like the clouded leopard, the way they both move through the trees (or bookcases, in Nemo's case) is similarly mesmerizing.

The zoo is a place that I will always think of as an us place, maybe even The Us Place, a place where we could always just be a couple. We haven't always been able to be out, career's and religion don't always agree with polyamory (or our bisexuality, but mercifully that was rarely a concern), but the zoo was far enough away from home that it was always safe to just be us, and to be an Us.

The zoo is Alicia's natural date location. A good date doesn't have to include the zoo, but a great date is going to have a targeted zoo visit. One where you pick a section and thoroughly explore it, planning things so you get to see a feeding (ideally the otters) and maybe a zookeeper talk. The whole zoo is too big for a day, and it took me a long time to realize this. The whole zoo is for tourists and families and school outings. A zoo date visits a third of the animals, then departs before you're too exhausted to enjoy a nice dinner.

Toronto has all the dinner options one could want, and we'd generally pick some nationality of food that's harder to get to in the Midland area, often stopping for dimsum before the zoo or whatever east Asian option struck our fancy as we were leaving. I generally did the legwork picking some restaurants so we'd have an easy time dealing with choice paralysis on the way home. We always ate well.

During the pandemic, these outings became how we saw each other. Which so much outside time, we didn't have to stress as hard about transmission. This became even more true after I got diagnosed with cancer and started chemotherapy. The outdoor portions let us be close, because I was always immunocompromised and Alicia is a primary school teacher. A difficult combination any time, but especially with covid-19 still surging. These outings are where we got to play pretend things were normal, and have our dates.

After the first round of chemo ended, and my surgery failed, we started taking a lot more risks. Zoo trips became more normal and frequent. We spent more time inside the pavilions, greenhouses and other indoor spaces. At the worst moment in my life, we had a special place to visit, to spend time at, and to enjoy the big cats and fatrounds. It took months before I was well enough to make the trip, but it was a highlight of that adventuring period in my life.

The Toronto Zoo did not start as a special place to me. I grew up too far away, it was a neat commercial I'd see on TV sometimes, on par with Marine Land and the occasional cross border ad for an American zoo or aquarium or African Lion Safari or similar. But it's a special place to me now, one of the most special and important in the world. Home to most of my favourite fatrounds, all of my favourite non-house-cats, and more memories than I'd care to count.

Of all the adventures I can no longer have, it's the one I'd jump at first for a do over. Fall's nearly here, the weather is just right for the large carnivores to be active, and soon Alicia will have a small break in her work schedule, just after report cards are in (school just started a week or two ago, but that's how school does), and we could have one more perfect little afternoon.

Scrap-Book Post

Trips & Treatment

This set of photos was taken over the past month.

I can't remember if I've said anything about the CT scan I got a few weeks ago, or the blood work I had done before I left for Bancroft, but that has happened, and it's time to see my oncologist. The appointment is tomorrow afternoon.

I don't have a good understanding of how people think I'm doing. I know I've been pretty vocal about how the surgical recovery has been going (very well, overall, but further gains are likely to be small, although its possible I don't yet know my capacity in some regards). But I have been less vocal (I think) about cancer symptoms.

I haven't been able to sleep through a night in weeks. I'll wake up, with my guts feeling like their solid, in the middle of the night. Sometimes water makes me have to use the bathroom with urgency. Sometimes it makes me throw up for a half an hour. Either way, sometimes I can get back to sleep, sometimes I doze until noon.

The list of things my dietician recommended I avoid a month or two ago has become largely mandatory. The small amount of coleslaw you get with fish and chips is usually fine, but salad or a helping of broccoli is a mistake. Fish never seems to be a problem, chicken is fine unless fried, and most red meat should be avoided. These rules must be followed exactly when far from home, or if I want to travel the next day, but can still be relaxed a bit if I'm staying in the Midland area.

The combination of chemotherapy and sleeplessness, at least, have left me extremely forgetful, clumsy and sluggish. I keep losing my keys. I've forgotten how to do basic computer stuff I've known for decades (or have tried to do it the Windows 95 way). I cannot focus on books, even though I got a fun adult book about dinosaurs from the library. My cooking abilities, long atrophied by years of deep depression, can't manage with my boring diet, tiny kitchenette and lack of energy to do dishes or other chores.

There are pains. Pains in places I especially don't want them, places that might indicate tumor growth (but probably not spread). But are they the sort that predate all this? I can't remember. I'll bring them up.

I'm extremely tired. I'm not particularly jazzed about continuing to do this. I've grown more and more convinced that the Bancroft trip is my post surgery peak, and that it's slow decline from here on. Those sort of thoughts are the way of madness, but the nature of the recovery and the disease means there will exist a peak or plateau.

Two weeks ago I was pretty certain I would not be restarting chemotherapy this time. The CT scan report only reinforces this conclusion. But the last few weeks have been rough, and I'm a lot less sure now.

<figcaptionHuntsville sculpture forest

From the comments

James Petrosky: When I started, I had many reasons to take my selfies, but I was pretty certain they weren't for me. I have no idea if they were then, I don't have access to that brain state. They're absolutely, in part, for me now

James Petrosky: I took a drive, ate a shawarma, almost ate some additional Taco Bell (the line was too long), had a nice drive until I met a raccoon, found a potential corn maze that's very close, and feel a bit better. It's hard to make yourself eat when your stomach is off, even when you know it'll make you feel better. And I need to try harder to get out of the apartment every day, even for a little walk, even if it's hard once the October storms come and it's always so rainy. None of these steps solve anything, but it isn't about solutions, it's a about comfort. For that reason, I'm happy to see my oncologist tomorrow. I get to do a trip to Barrie, I get to talk to people and be around people who, sadly, understand my situation. I get to go for pho after, which is damn near the perfect food for if you're chronically underhydrated like me.
I don't like chemotherapy, but I like trips and cats and people, so if it's time for it, then I look forward to quiet days laying in bed watching old noirs.

Mortality

I reflected on this on September 4, 2024

This is the anniversary of when I started this album. I'm not sure what I thought I was doing then, but eventually I found my comfort zone relating my experiences with the medical system - the administrative side and the treatment side. This was a comfortable place through chemotherapy, and honestly an exciting one for me to be in through surgery. But I've struggled a bit since then.

I thought it was just that surgical recovery was boring (and it is), but chemotherapy was the same two week cycle sixteen times, and I never felt this way about it. I still talk nonstop about my cancer, as any of you who know me in person, or are in the same Facevook groups, can attest. But I haven't been able to figure out this place.

I think the reason is that, in light of my failed surgery and prognosis, the only place it made sense for me to go was do the same kind of day by day thing, but instead of it being about getting the full cancer trearment experience at 35, it's about grappling with mortality at 36 and, statistically, dying at 37.

Mental health wise, I'm just coming down from a minor hypomanic episode and feel stable, bipolar wise. My lithium levels are good. If asked how I'm doing, I'd truthfully answer "good, given the circumstances," but I can't tell you if that means I'm doing good.

I'm not an actor, though, when you see a look of delight on my face, that's real. I do have an actual notebook with an actual list of neat stuff to do and I am actually crossing things off on all my little adventures. I'm getting out and experiencing the world. Probably doing way more than I ever would have if I remained otherwise healthy, too, which is a thought too terrifying to contemplate.

To end, because it's been haunting my dreams and hopefully sharing will help, if someone, someday, talks about my death bed conversion, know that they are a disgusting fiend who takes advantage of the vulnerable to glorify themselves. If disease progression or treatment leaves me vulnerable earlier than that, same logic applies. These people were never able to convince me so far, I doubt they'll come up with something compelling in the next few years. I doubt I'm interesting or notable enough to receive this treatment, but I know it happens, so I know I'm not 100% unreasonable in my fears.

From the comments

James Petrosky: 37 is an estimate. I don't want anyone who knows me well enough to start doing math on my birthday and panicking. 38 is probably a better estimate, but 37 fits the flow a lot better, and it's all statistics based on regular colon cancer anyways

James Petrosky: I want to dramatically say "from here on in its all about death" but honestly it's been that way for a while. You have no idea how happy the "thinking about death" joke in Barbie made me, because a) it was funny, and matched my mental state perfectly and b) gave me a lot of cover to joke about it all summer. So thank you, Uncontrollable Thoughts of Death Barbie, you're a life saver.

James Petrosky: Somewhat related to liars for Jesus are liars for other spiritual causes. Mediums, channelers, seyances, ghost hunters, it's all evidence free nonsense, and they do tremendous harm to people undergoing grief by giving them a false hope that can never, ever be realized. If there is somehow an afterlife that can communicate back to the living, I promise you I'll never, ever give these dangerous frauds the time of day. I can be a stubborn person, and this is the thing I'm most stubborn about, so you can be sure I'll hold to it.

Because we live in something approaching a techno dystopia, it's possible to train a large language model on someone's social media history to create a computer program that can write and speak like you can. Maybe there's not enough information available for me. Almost certianly I'm not important enough for this treatment. But if this is done, and it's done well enough to be convincing, the output program is also not me. It's just an actor, playing a role. The same as a spiritualist, they just learn their script from different sources.

Pre-chemo restart blood work

There's no memento mori quite like walking into a cancer centre at 0800 on a Monday

From the comments

James Petrosky: At least I'm the youngest one here by a decade or two. All you alls are allowed to be saddened by that on my behalf, but it's so much easier for me

Don't worry about me, death causes me a lot less mental anguish than the fact that I need to do a urine test in half an hour but really, really need to pee now